How health systems can protect de-identified patient data

2021-06-09

De-identified patient data often contains enough details to be linked to individual patients, and it should be handled the same as HIPAA-regulated patient data, Kenneth Mandl, director of the computational health informatics program at Boston Children's Hospital, and Eric Perakslis, chief science and digital officer at Duke Clinical Research Institute, wrote in The New England Journal of Medicine. Health care organizations that share data should have contractual agreements limiting its use and create methods to keep data in-house while giving researchers the access they need, and lawmakers should consider new laws giving patients more control over their data, Mandl and Perakslis wrote.

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