Data removes the barriers to understanding rare disease

Rare disease research and treatment development is uniquely challenging given the limited understanding of rare and genetic diseases.


De-identified, real-world data (RWD) features claims and electronic health record (EHR) data. It also encompasses data from other encounters such as labs, diagnostics and post-surgical care data to present an end-to-end view of patient care and close the data divide. This robust, longitudinal patient view makes RWD an invaluable tool for stakeholders across the health system.

Read how RWD creates a remarkable opportunity for researchers and product developers in the rare disease space to fill the data divide to power the development of effective treatment options.