Survey explores end-of-life care barriers for minorities | New palliative care degree program seeks rural practitioners | Palliative emergencies require rapid responses, RN says
November 20, 2015
Hospice and Palliative Medicine SmartBrief
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Survey explores end-of-life care barriers for minorities
Survey data from 300 people of multiple ethnic backgrounds showed a lack of finances and insurance was the most frequently mentioned barrier to getting the type of end-of-life care they wanted, according to Stanford University researchers. Their study in the Journal of Palliative Medicine found other barriers included communicating with physicians, a lack of health care access, disagreement among physicians about care plans, culture and religious differences, and family beliefs. McKnight's Long-Term Care News (11/18)
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Palliative & Hospice Care Update
New palliative care degree program seeks rural practitioners
One goal of the new master's degree program in interdisciplinary palliative care at the University of Colorado Anschutz Medical Campus is to enroll practitioners from rural areas that lack palliative services, according to program leaders. Oncologist Amos Bailey said the program will help create more uniform qualifications for palliative care practitioners. "For a lot of us, we had to learn on the job and I just don't think that's acceptable any longer," he said. The Aurora Sentinel (Colo.) (11/18)
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Other News
Patient & Family Perspective
N.C. county initiative to help residents with dementia
The Dementia-Friendly Business Campaign in Orange County, N.C., wants to increase community support for people with dementia and other intellectual and developmental disabilities and help people lead fuller lives, said Department of Aging Director Janice Tyler. Businesses that join the initiative agree to have a training program for employees about interacting with people who have dementia. Attorney Colin Austin said it is important to listen to people with dementia, understand their needs and consider their opinions. The News & Observer (Raleigh, N.C.) (11/19)
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Medical Research
Cachexia is difficult to discuss with patients, families
There are no approved drugs to manage anorexia/cachexia in cancer patients, but some off-label medications are used with varying success, according to experts at the Palliative Care in Oncology Symposium. This is a difficult issue to discuss with patients and family, and Susan McClement of the University of Manitoba said understanding cachexia requires evaluating its impact on families. "The unit of care in palliative care is the patient and family unit, so we are missing part of the equation, if we don't factor in the impact (of cachexia) on family members," she said. Medscape (free registration) (11/19)
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Researchers study initial treatments for HR+ breast cancer
A study found that patients with hormone receptor-positive/HER2-negative metastatic breast cancer who received initial palliative chemotherapy had lower progression-free survival than patients who received initial endocrine therapy. Poorer outcomes also were seen among patients in the initial palliative chemotherapy group, researchers wrote in the Annals of Oncology. Oncology Nurse Advisor online (11/17)
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Health Policy & Practice
Bill would pay Medicare recipients for completing advance directive
Bipartisan legislation would give Medicare patients a small financial payment if they give physicians and family clear legal guidance on their care preferences should they become incapacitated. The Medicare Choices Empowerment and Protection Act also would provide a website telling Medicare patients they can decide to reject or accept medical care based on their values. The Examiner (Washington, D.C.) (11/19)
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Groups say joint effort leads to "seamless" CME, MOC process
The American Board of Internal Medicine and the Accreditation Council for Continuing Medical Education are creating a "seamless" process that combines continuing medical education activities and Maintenance of Certification requirements, officials with the groups said in an ABIM blog. The groups posted CME activities that are qualified for MOC credit on the ACCME website. Healio (free registration) (11/17)
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Health group calls for streamlining of MU measures for providers
The American Medical Association voted Tuesday to call for revisions that make EHR meaningful use standards less burdensome for providers. The group said the standards need to be refocused on patient care quality and away from "burdensome, administrative tasks." (11/18)
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Trends & Technology
Reminiscence as therapy inspires old memories in dementia care
Reminiscence as therapy is being used in dementia and Alzheimer's care at nursing homes and assisted living facilities. The Easton Home in Pennsylvania has rooms decked out in styles from the 1930s through 1950s, while Cedar Lake Village in Kansas parked a 1968 Ford pickup in the courtyard to encourage residents to recall their first vehicles. San Francisco Chronicle (free content)/The Associated Press (11/20)
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Attend the 2016 AAHPM & HPNA Annual Assembly March 9-12 in Chicago
Join the more than 2,500 hospice and palliative care professionals who meet once each year to gain knowledge directly from leaders in the field. Learn the latest scientific advances. Get inspired and invigorated by captivating speakers who will remind you why you chose to work in hospice and palliative care. Share best practices, ask questions and build long-lasting relationships. Save $100 on the cost of registration when you register by Feb. 1.
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Best of 2015 Annual Assembly recordings
We've made it easy for you to hear one or more of the best sessions from the 2015 AAHPM & HPNA Annual Assembly. Learn about grief and bereavement, unique strategies for addressing cultural beliefs, and building resilience. These and other topics are now available in the AAHPM bookstore.
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Courage is resistance to fear, mastery of fear -- not absence of fear."
-- Mark Twain,
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