"The Pause" helps clinicians deal with a patient's death | Hosparus seeks to show value of palliative care | AHA: Costs of informal caregiving in CVD to hit $128B in 2035
April 11, 2018
Hospice and Palliative Medicine SmartBrief
News for physicians caring for the seriously ill
Top Story
"The Pause" helps clinicians deal with a patient's death
"The Pause" is being adopted by hospices, emergency departments, ICUs and other settings so that clinicians and staff can take a moment immediately after a patient death to honor the life of the deceased, process the death themselves and grieve. Cleveland Clinic staff created a script for the Pause, and in some units family members are included if they wish to participate.
MD Magazine online (4/9) 
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Put Your Palliative Care Program on the Map
Participate today and get listed in the Provider Directory on GetPalliativeCare.org, the #1 palliative care site for patients & families. Open to community palliative care programs provided by: hospital, hospice, home health, office/clinic, long-term care. Learn more & add your program.
Palliative & Hospice Care Update
Hosparus seeks to show value of palliative care
Hosparus Health conducted a small advanced illness/palliative care pilot project for a health insurer that prevented 30 hospital emergency department visits among the study group of 22 patients. Hosparus is committing $1 million a year to continue the program because palliative care fits with its mission and also in an effort to show payers that palliative care can reduce costs, improve outcomes and increase patient satisfaction.
Home Health Care News (4/6) 
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Patient & Family Perspective
AHA: Costs of informal caregiving in CVD to hit $128B in 2035
An American Heart Association policy statement published in the journal Circulation estimated the cost of informal caregiving for patients with cardiovascular disease will increase from $61 billion in 2015 to $128 billion in 2035. The AHA called for the development of a national caregiving strategy, expanded access to palliative care, the incorporation of outcomes and caregiver engagement to payment reforms, and prioritizing caregiving research.
Healio (free registration)/Cardiology Today (4/9) 
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Medical Research
Study links TBI to higher risk of dementia
Research published in Lancet Psychiatry found patients who had any type of traumatic brain injury had a 24% higher risk of dementia than those who did not experience a TBI. Even experiencing one mild TBI increased the risk of dementia by 17%.
The New York Times (tiered subscription model) (4/10) 
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Report: Ischemic heart disease top cause of death
A report in the Journal of the American Medical Association said ischemic heart disease was the leading cause of death in the US from 1990 to 2016, while the overall mortality rate decreased. There were wide disparities in disease burden, with increases in opioid use disorders and decreases in breast cancer mortality, while high blood pressure, blood glucose and body mass index, along with poor diet and alcohol and drug use, each accounted for more than 5% of risk-attributable disability-adjusted life years in 2016.
Healio (free registration) (4/10) 
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PET study: Lack of sleep tied to increase in marker for Alzheimer's
NIH researchers who used PET found that 19 of 20 healthy individuals who experienced one night of sleep deprivation had significantly increased levels of beta-amyloid protein, which is associated with Alzheimer's disease, in their brains, compared with when they had a good night's sleep, but the increases were not clinically significant for Alzheimer's. The findings in the Proceedings of the National Academy of Sciences should prompt more studies to determine whether there is a direct association between inadequate sleep and higher Alzheimer's risk, researchers said.
Quartz (4/9),  HealthDay News (4/9) 
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CV risk factors tied to worse survival with breast cancer
Researchers reviewed data from five breast cancer trials and found that patients with breast cancer and coronary artery disease had a significantly elevated risk of all-cause mortality. The study in the Journal of Clinical Oncology found every additional risk factor for cardiovascular disease was linked to lower progression-free survival and greater risk of death.
MedPage Today (free registration) (4/8) 
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Health Policy & Practice
Experts: CMS quality measures should address patient concerns
Quality measures used in bundled payments do not take into account what patients value most by failing to consider diagnostic accuracy, whether a treatment is the most appropriate option and if it will improve long-term health, researchers wrote in the Annals of Internal Medicine. They said the CMS should adopt a quality framework that determines whether treatments are appropriate, if the patient's health improves and how much the treatment costs.
Medscape (free registration) (4/10) 
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Pharmacies continue to face drug shortages
Drug shortages continue to challenge pharmacies, said pharmacist Erin Fox in a presentation at the MHA Business Summit. Chemotherapy, cardiovascular, central nervous system and nutritional drugs are in short supply, and shortages in saline, for example, can affect the use of specialty drugs that require saline for infusion, she noted.
Specialty Pharmacy Continuum (4/6) 
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Trends & Technology
Privacy concerns hinder patients' access to online medical records
The ONC evaluated National Cancer Institute survey data and found that although 52% of US individuals were given access to their online medical records in 2017, only 53% of them accessed their records once or more in the past year, and 25% did not access their records because of concerns about security or privacy. Respondents also cited not needing to use their online records, preferring to speak directly with their clinician, and lack of access to the website as reasons for not accessing their records.
Health IT Security (4/9) 
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View the Editor's Picks from the recent issue of JPSM
The April issue of the Journal of Pain and Symptom Management (JPSM) is now available. Read the highlights at AAHPM's website.
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2018 Virtual Conference -- Register now!
It's that time of year! Time to save the date for the 2018 Virtual Conference: Turning Points -- Mastering Transitions in Care, hosted by NHPCO, HPNA, and AAHPM. This conference will discuss improvements to communication, identify key points of transition in care, and include strategies to providing high quality care during transition. Mark your calendars for July 18-19, 2018. Learn more.
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I've found that there is always some beauty left -- in nature, sunshine, freedom, in yourself; these can all help you.
Anne Frank,
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